[kj] OT Autism
Frank Frik
frankfrik at yahoo.com
Fri Aug 24 07:22:11 EDT 2007
NO NO NO NO, PAUL. You thread is the best! Let's set the other one and name it AUTIZM-COMMUNISM. I feel, that Mister Black will be involved. He hates idiots.
Here people likesof Brendon and ade started new CV's already...lol...
Cheers! Frank, Austria
ps. Where I have to read and get into my brains that synndrome? Forgot, what the name of web you wrote. :)
paul wady <paulwady at hotmail.com> wrote:
My Mrs to be is in her 40's and doing a phd, but she stims and flaps, and wears earplugs in the cinema. I stim too. It never ends.
Isnt it significant how many Gatherers have responded to my little disclosure? Cool.
I think KJ loving parents will make good Aspie parents too. A certain anarchic open mindedness.
Keep Smiling...
---------------------------------
From: "T.B." <Partyslammer at socal.rr.com>
Reply-To: "T.B." <Partyslammer at socal.rr.com>,"A list about all things Killing Joke (the band!)"<gathering at misera.net>
To: <fbc at 21ca.com>, "A list about all things Killing Joke (the band!)"<gathering at misera.net>
Subject: Re: [kj] OT Autism
Date: Thu, 23 Aug 2007 09:12:39 -0700
>"Frank Coleman" wrote:
>
>
>>It's important to remember that Autism is a spectrum, which ranges
>>from being "high-functioning" -- e.g., barely discernible from
>>non-Autistic people -- to having to be institutionalized for life.
>>
>>My 17-year-old stepdaughter has Asperger's Syndrome and goes to a
>>mainstream school in NYC, oriented towards performing arts. My
>>wife teaches drama to Autistic kids for a living and has worked
>>miracles with her and others.
>>
>>Here's a terrific article on what Asperger's is like, from a recent
>>article in The New Yorker.
>>
>>http://www.newyorker.com/reporting/2007/08/20/070820fa_fact_page?printable=true
>
>I just caught this thread amidst my tons of mail. My 10 year old
>son is autistic.
>
>My wife and I are fairly well involved in our local community of
>autistic families and so we've seen pretty much the entire range of
>children and young adults who suffer from it from kids that are in
>their teens and a very low functioning with a lot of social issues
>who basically sit at home with violent tendencies who'll be forced
>to live in assisted medical care housing for the rest of their lives
>when their parents die to children who you'd never know they had
>autism but have perhaps minor problems integrating around other kids
>and are exceptional with certain fields like math and science.
>
>Really, no two people suffering from autism have exactly the same
>issues which is also why it's so hard to treat.
>
>Our son falls kinda in the middle of the spectrum. He started out
>when he was born a perfectly healthy, happy baby in '97 and by about
>18 months, he was just starting to talk like any typical baby his
>age. At that point, he had his MMR vaccines and got very sick for
>two days, something our doctor said was "normal" in many cases.
>Within a few weeks, we noticed he'd stopped talking altogether and
>was crying a *lot* and was starting to walk on his tippy-toes like a
>bird. At two years, he still was not talking and exhibiting more
>autistic behavior like flapping his arms when he was excited and we
>were becoming very concerned. We had to go through a lot of
>bullshit to get a referral to see a neurologist who knew right away
>our son was autistic. Once we had a diagnosis, it opened up a lot
>of doors to get in-home therapy which is by far the most important
>thing for a young autistic kid - parents need to get on the ball as
>soon as possible.
>
>We also worked at his disease from a medical standpoint, having a
>lot of tests done through several doctors here in the US who were
>and are known as cutting edge in treating the problem. Once we
>established possible causes (high mercury content in his bloodwork,
>so-called "leaky gut" issues) with various drugs and a strictly
>controlled diet we got at least his physical issues under control
>which theoretically aided his brain and body to develop as best as
>it could through his early years. Through his first few years in
>school, we fought hard with the local school district to get the
>services he needed and should have had access to according to state
>and federal laws. We wound up suing and winning against our school
>district which although cost us well over 125 thousand dollars, our
>son received and has a great school program with an appropriate
>classroom and classmates and a wonderful full time aid.
>
>He still has a very long ways to go but we're getting there. On the
>surface, he seems like any other kid his age. But he still has
>significant sensory issues, he has to wear earplugs just to go in a
>movie theater and is deathly afraid of butterflies(!). That's the
>toughest thing about autism from an outsider's point of view, is
>there's very little logic or patterns to and autistic person's
>problems and behaviours.
>
>He can't be "cured" but our goal is for him to be able to work and
>make his own life in society independently of anyone else long after
>we're gone.
>
>T.B.
>
>
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